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NATIONAL SCLERODERMA FOUNDATION


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Stepping Out to Cure Scleroderma
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 * Understanding Scleroderma
 * Treating Scleroderma
 * Living Well with Scleroderma
 * Advancing Research and Treatment
 * Get Involved
 * Find your Chapter
 * Donate

Back Understanding Scleroderma
 * Get the Facts
   * What is Scleroderma?
   * Who Gets Scleroderma?
   * Forms of Scleroderma
   * Symptoms of Scleroderma
   * Glossary of Terms
 * Diagnosis
   * Diagnosis & Tests
   * Newly Diagnosed
 * Pediatrics
   * Scleroderma and Kids
   * Diagnosing Pediatric Localized Scleroderma
   * Prognosis for Pediatric Localized Scleroderma
   * Diagnosing Pediatric Systemic Sclerosis

Find Your Path!
Back Treating Scleroderma
 * Build Your Treatment Team
   * Find a Treatment Center
   * Find Your Local Chapter
 * Treatment & Trials
   * Treatments & Medications
   * Find a Clinical Trial
 * Pediatrics
   * Treating Pediatric Localized Scleroderma
   * Treating Pediatric Systemic Sclerosis

Read the Latest Research News
Back Living Well with Scleroderma
 * Patient & Caregiver Education
   * Education
   * 2024 National Scleroderma Conference
   * Local Programs
   * National Programs
   * Virtual University
   * Caregivers & Friends
   * Scleroderma Voice Magazine
 * Pediatrics
   * Pediatric Education
   * 2024 Kids Get Scleroderma, Too! National Conference
   * Pediatric Resources & Supportive Care
 * Find Support
   * Find Support Groups
   * Virtual Groups
   * Inspire Discussion Board
 * Resource Center
   * Resources
   * Health and Safety

Back Advancing Research and Treatment
 * Researchers & Grants
   * Scleroderma Research Grant Program
   * Grant Opportunities
   * Grant Application Form & Instructions
   * Current Grantee Reporting Forms
   * Our Grant Awardees
   * Mentor Programs
   * Pre-Doctoral Fellowship Recipients
   * Global Webinar
 * Pharma & Biotech Patient Engagement
   * Patients as Partners
 * Continuing Education
   * Continuing Medical & Nurse Education: The Lung in Scleroderma
   * Continuing Medical & Nurse Education: Hand Involvement in Scleroderma

Back Get Involved
 * Why It Matters
   * Impact on People with Scleroderma
   * Voices of Scleroderma
   * Major Initiatives
   * Accelerate Research
   * Collaborations
   * Where Your Money Goes
 * Give
   * Ways to Give
   * Leave a Legacy
   * Scleroderma Hope Society
 * Fundraise With Us
   * Join a Walk
   * Start a Fundraiser
   * Be a HopeRaiser
 * Become a Member
   * Member Benefits
   * Scleroderma Voice Magazine
 * Advocacy
   * Our Priorities
   * Take Action
   * Prepare Your Story
   * Talk to Your Elected Official
   * Advocate Resources
   * 2023 Scleroderma Awareness Month
 * Corporate
   * Corporate Philanthropy Program
   * Sponsorship Opportunities
   * Our Partners

Our Mission The National Scleroderma Foundation’s mission is to advance medical
research, promote disease awareness, and provide support and education to people
with scleroderma, their families and support networks. Our vision is to be a
relentless force in finding a cure and improving the lives of people affected by
scleroderma.

Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face
of scleroderma includes people of all ages, genders, and backgrounds.
Scleroderma can affect young parents, children, grandparents, and teenagers.
Thanks to the passion and dedication of countless volunteers, scientists, and
supporters, we’re advancing our mission faster than ever.


Find What You Need

One of the most challenging things about scleroderma is that it presents
differently in each person. Find the right resources for you.

Find Support

Share and learn from others, at different places in their journey, through
‘Living with Scleroderma Groups’ for adults, children, and those who care for
them.

Learn More
Find Resources

No matter what type of scleroderma or where you or your child are on your
journey, the Scleroderma Foundation can help you find your best path.

learn more
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma
centers, specialists, clinical trials, studies, and get help navigating the
healthcare system.

Learn More
Connect Locally The Foundation can connect you with others living with
scleroderma through our nationwide network of chapters, in addition to more than
100 support groups.
Find Your Chapter Find a Support Group
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give
you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest
research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You
can help make a difference in the lives of people with scleroderma today by
supporting our mission.
Donate Now



featured news Read the latest news and information from the Foundation.
February 1, 2024 Foundation Leader Named Fellow of National Academy of Inventors
for Pioneering Contributions to Fibrosis Research

Dr. Carol Feghali-Bostwick, a distinguished translational researcher and the
SmartState and Kitty Trask Holt Endowed Chair for Scleroderma Research…

read more
January 29, 2024 The Assistance Fund Opens New Program for Systemic Sclerosis

ORLANDO, Fla., January 29, 2024 (Newswire.com) – The Assistance Fund, an
independent charitable patient assistance organization that helps patients and…

read more
January 1, 2024 2024 Membership Drive Now Open

The National Scleroderma Foundation’s mission is to advance medical research,
promote disease awareness, and provide support and education to people with…

read more
December 13, 2023 Smart Ways to Give Before 2023 Ends

Are you hoping to close this year with a charitable gift that supports the
scleroderma community and reduces your…

read more
Sign Up for a Foundation Event Upcoming Events
February 13, 2024; 7 p.m. Eastern Newly Diagnosed Support Group Email for
meeting details
February 17, 2024; 10 a.m. MT Caregivers Connection Support Group Email for
meeting details
February 20, 2024; 7 p.m. Eastern Bereavement Support Group Sign up
February 20, 2024; 7 p.m. Eastern Localized Scleroderma Support Group Email for
meeting details
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma
research. Learn more about how this program accelerates the search for better
treatments, and ultimately, a cure.

Research Funded by the Foundation


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scleroderma and the National Scleroderma Foundation

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National Scleroderma Foundation

300 Rosewood Drive, Suite 105
Danvers, MA 01923

info@scleroderma.org (800) 722-4673
 * About the Foundation
   * Mission, Vision & Values
   * Board of Directors
   * Medical & Scientific Advisory Board
   * Patient Advisory Board
   * Our Team
   * Our Partners
   * IRS Form 990
   * Audited Financials
   * Annual Progress Report
   * Careers
   * Charity Navigator
   * Candid (Guidestar)
 * Privacy Policy

 * Media & News
 * State Fundraising Disclosure
 * Giving


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