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MY FAMILY KEPT MY DAD'S SECRET FOR YEARS. I WASN'T PREPARED FOR WHAT TELLING THE
TRUTH WOULD MEAN.

"I understood that not talking about the pain I was feeling would protect them.
So we all learned to pretend."
By Melanie Brooks, Guest Writer


Guest Writer

Apr 5, 2024, 07:55 AM EDT

48 COMMENTS
The author’s father, Dr. Orville Messenger, in Nova Scotia in 1993.
Courtesy of Melanie Brooks

Family secrets are nothing new.

It’s safe to say that almost every family has probably hidden something from
others, and maybe even one another, out of fear, shame, self-protection or even
love. Not everyone feels the press of those reasons so acutely that the silence
threaded into the secret-keeping lingers long after the secret has been revealed
and becomes a crushing burden, eventually too difficult to carry.

But I did.

In 1985, when I was just 13 years old, my 42-year-old surgeon father underwent a
quadruple bypass after suffering a heart attack. Eight months later, he received
the news that the transfused blood he’d been given during surgery was
contaminated with HIV and he’d contracted the virus.

Advertisement


Almost 40 years later, those who contract HIV can live long, healthy lives with
the help of medication. But in 1985, being diagnosed with the disease was
nothing less than catastrophic — a nearly certain death sentence.



AIDS was still a mystery back then. Misinformation, ignorance, bigotry and
stigma fueled people’s views. We lived in a frightened society — one that
largely believed people diagnosed with HIV were responsible for their own
infection.

Advertisement
Continue watching

Family Dinner Done Right


In a feature piece in the fall of 1985, Time magazine called people with AIDS
“The New Untouchables.” Inconsistent and conflicting messages about how HIV
spread made people afraid to even come into contact with someone infected with
the virus. Many individuals known to be HIV positive or to have AIDS lost their
jobs, their homes and the support of their friends and neighbors.



The author with her father in New Brunswick, Canada, in 1973.
Courtesy of Melanie Brooks
Advertisement


Making matters worse were members of the evangelical Christian right who were
among the loudest voices about AIDS in the 1980s and early ’90s, claiming it was
a weapon of God’s wrath. Jerry Falwell, an influential Southern Baptist
preacher, televangelist and founder of the Moral Majority political
organization, declared, “AIDS is not just God’s punishment for homosexuals; it
is God’s punishment for the society that tolerates homosexuals.” Conservative
commentator Pat Buchanan, a close adviser to President Ronald Reagan, called
AIDS “nature’s revenge on homosexuals.”

This harmful theology played a considerable role in the way my father coped with
his diagnosis. As a devout Christian who’d grown up in a fundamentalist church
tradition that believed homosexuality was a sinful lifestyle choice, he
struggled to reconcile his situation with society’s and the evangelical church’s
stance on his disease and its causes. He feared for his personal reputation.

Though he was an accomplished physician, he felt disempowered by the limitations
of his — and the greater health system’s — knowledge about the facts of HIV. The
only certainties were that the disease spread at a rapid rate and there was no
cure. He expected, like most patients he knew or knew about, that he could die
at any time in any number of terrible ways.

My father was unwilling to chance infecting his patients, and he made the
painful choice to end his medical practice, taking an advisory position in a
national medical legal association. He refused to allow my mother, brothers or
me to endure any form of ostracism because of his HIV status. His illness would
be a secret.



The author with her father at her college graduation in Massachusetts in 1993.
Courtesy of Melanie Brooks
Advertisement


When my parents first found out about Dad’s infection, they didn’t tell me. They
did, I know now, tell my two older brothers, but they left me and my younger
brother out of the conversation.

Trauma researchers say that our brains can hide experiences to protect us from
having to relive them. To protect us from overwhelming fear or stress that is
tied to them. Sometimes those experiences remain hidden forever. Maybe this is
what happened to me, because even though how I knew remains a baffling hole in
my memory, I knew Dad had AIDS within days of his diagnosis.

As I felt my world being upended with this unwanted knowledge, I took inventory
of the facts:

 * The news was flooded with stories of people, mostly gay men, developing
   horrible illnesses because of the virus.
 * Magazine covers on newsstands described AIDS with words like “plague” and
   “epidemic” and “threat.”
 * Parents picketed outside schools carrying signs with hateful slogans to keep
   away children who’d tested positive for the disease.
 * A group of boys in my eighth-grade class had started bullying other kids on
   the playground with the taunt, “Careful not to get too close to him. You
   might get AIDS!”
 * Some people at church had said God was using this disease to launch his
   revenge on sinners.
 * AIDS had no cure.
 * Since no one was talking about any of it with me, I understood I couldn’t
   talk about it either.

I couldn’t talk about this thing that had stolen my sense of security and
safety. I couldn’t talk about how sad I was. How alone I felt. How confused.
Terrified. I couldn’t tell anyone about the nights when sleep refused to come
and I’d sit with my back pushed into the wooden headboard of my bed, my knees
squeezed against my chest, clutching my bedspread to my chin. I stared into the
darkness, my eyes burning with the strain of trying to glimpse the thing hiding
just beyond where I could see. The thing hovering over everything. I tried, but
failed, to shut down the blur of frightening thoughts and images that
cartwheeled through my brain as I imagined all of the possible ways Dad would
die.

Dad lived for 10 more years.



The author with her father on her wedding day in Nova Scotia in 1994.
Courtesy of Melanie Brooks
Advertisement


With no road map for these circumstances, my parents were desperate to keep life
as normal as possible for my brothers and me, and they hoped, I think, that not
talking much about Dad’s illness would protect us (even after it was clear to
them that I knew). I understood that not talking about the pain I was feeling
would protect them. So we all learned to pretend.

Pretending was easy. Even though Dad developed AIDS after five years and
suffered (I learned much later) one opportunistic infection after another, until
the final year of his life, he didn’t look sick. He didn’t look different from
any other dad I knew. Most days he could get up, put on a suit and go to work.
He mowed the lawn and weeded the garden on weekends. He downhill skied and
ice-skated and swam and boated. He took our golden retriever on long walks. Life
moved forward, and we moved with it.

Just beyond the façade, though, the anguish of our circumstances hung heavy in
the air. I could see my beloved dad, the man whose charisma and brilliance had
always made him seem larger than life to me, shrinking beneath the stigma and
shame of his illness. My dear mom, who shouldered the bulk of Dad’s physical and
emotional care on her own, bent with the burden. We were all suffering, but the
culture of silence created by the secret kept us from sharing in that aching
grief together. Instead, we each traveled our own lonely paths of coping.

Two years before he died, Dad started writing a book. It began as a personal,
therapeutic attempt to try to understand the mess of what had happened to him.
As his narrative took shape, he read passages to my mother, and she added
thoughts of her own. An idea bloomed between them: Maybe they had something to
say. Maybe their experience living with HIV and AIDS could help someone else.
Maybe their unique story could dispel some of the myths that swirled in the AIDS
climate of the early 1990s and add a different voice to the mix. Maybe, as
Christians themselves, they could call out the Christian community for its
destructive and narrow-minded views toward victims of this devastating illness
and encourage a more loving, Christ-like response in the face of suffering, no
matter what form it takes. Maybe their story mattered enough to break a
nine-year silence and spill their secret. Our secret.

I treaded carefully around the concept of the book. I knew how risky writing it
was for Dad. To me, the endeavor felt precarious, like a fragile cord being
woven together, thin thread by thin thread, to create a lifeline that might
finally pull us out of our isolation.



The author with her brothers (from left) Mark, David and Michael, and her
mother, Dorothy, in Vermont in 2020.
Courtesy of Melanie Brooks

The book was published in 1995, six months before Dad died. My parents had
broken free of the secrecy, experiencing the relief of finally talking to others
about what they’d endured. And when it ended up on the Globe and Mail’s
bestseller list for a couple of weeks, they were met with an outpouring of
support from friends and strangers. Support that bolstered them in the final
months of Dad’s life.

Ironically, though, the book’s contents remained largely unspoken within my
family circle. By then I was newly married and living a thousand miles away.
Lost somewhere in that distance and physical separation was the permission I
believed I needed to break free, too — the new set of family rules that would
help me navigate a world where the secret was no longer necessary. I packed away
the fear, the grief, the loss, the anger, the confusion, the shame, and I kept
on pretending.

My silence hung on for two more decades until I just couldn’t carry all of those
stored emotions anymore. Pretending wasn’t doing me or anyone else any good. I
wasn’t OK, and I hadn’t been OK for a long time. So without having any idea
where the tandem endeavors might lead, I started therapy and I started writing.

Advertisement


The road to finding the answer to what happened to me was a long and painful
one. I had to look back at that moment that divided my life into a before and an
after. I had to dig into memories of living in the after that sometimes felt too
hard to face. Felt too frightening to reveal. That sometimes made me feel like
looking at them would actually kill me. I had to pull back the curtain on the
shame and fear that were still embedded in me and give them words. With the
careful guidance and support of writing mentors and an excellent therapist, I
finally figured out how.

Until then, I realized, I had never truly been myself. All those unspeakable
things stood directly in the way. Replacing that long-held silence with an
honest recounting of the experience helped break down that barrier.



The author with her husband, Chris, son, Will, and daughter, Lily, on Prince
Edward Island in July 2023.
Courtesy of Melanie Brooks

My path to processing and finding meaning in my family’s experience is carved in
words. For my mother and brothers, it has taken different shapes. Two of my
brothers are physicians, following in Dad’s footsteps and making his calling to
caring for others in their times of suffering their own. My oldest brother is
the president of a global relief organization that works specifically with
marginalized communities around the world, many of which have been devastated by
HIV/AIDS. After my father died, my mother changed careers and worked for a time
as a family therapist, channeling her compassion and lived experience of
loneliness and isolation to offer companionship to others coping with difficult
circumstances.

These days, I stand directly in front of readers of my story, speaking with a
confidence I’ve never felt before. Sometimes it’s to a room so packed that extra
chairs are needed. On other nights, just a single soul shows up. But each time,
I feel a deep sense of connection to those in attendance. I have no idea the
specific stories or suffering carried by those who read my book or who raise a
hand at an event and nudge the topic of spilling the secret. I can only know
what I’ve carried and speak authentically about how good it feels to put it
down. I can only hope that my words might help someone else put their unspoken
burdens down, too.

Advertisement


Melanie Brooks is the author of “A Hard Silence: One Daughter Remaps Family,
Grief, and Faith When HIV/AIDS Changes It All” (Vine Leaves Press, 2023) and
“Writing Hard Stories: Celebrated Memoirists Who Shaped Art From Trauma” (Beacon
Press, 2017). She teaches professional writing at Northeastern University and
creative nonfiction in the MFA program at Bay Path University in Massachusetts.
She holds an MFA in creative nonfiction from the University of Southern Maine’s
Stonecoast writing program and a Certificate of Narrative Medicine from Columbia
University. Her work has appeared in The Boston Globe, Psychology Today, Yankee
Magazine, The Washington Post, Ms. magazine and other notable publications. She
lives in New Hampshire with her husband, two children (when they are home from
college) and a chocolate Lab.

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