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* Newsfeed * Shop * Contact * Donate * Shop * Contact * Donate * For Patients * For Patients * NF1 * NF2-Related Schwannomatosis * Schwannomatosis * Find a Doctor * NF Registry * Clinical Trials * Resources * Educational Events * Share Your Story * For Healthcare Professionals * For Healthcare Professionals * Diagnostic Criteria * NF Clinic Network (NFCN) * Conferences & Education * Partnerships * For Researchers * For Researchers * Funding Opportunities * Conferences & Education * Research Tools & Resources * Clinical Trials Pipeline * Our Progress * Our Progress * Mission & Impact * Progress in NF1 * Progress in NF2-Related Schwannomatosis * Progress in Schwannomatosis * Take Action * Take Action * Ways to Give * Fundraise * Raise Awareness * Advocate * Volunteer * Resource Center OUR MISSION IS TO END NF Take Action NF IS A GROUP OF GENETIC DISORDERS THAT CAUSES TUMORS TO GROW ON NERVES THROUGHOUT THE BODY NF - which includes all forms of neurofibromatosis and schwannomatosis - affects 1 in every 2,000 births or about 4 million people worldwide. Anyone can be born with it and it affects everyone differently. NF can lead to blindness, deafness, bone abnormalities, disfigurement, learning challenges, disabling pain, or cancer. There is no cure yet. The Children's Tumor Foundation's mission is to drive research, expand knowledge, and advance care for the NF community. LATEST NEWS CHILDREN’S TUMOR FOUNDATION AND GLOBAL COALITION FOR ADAPTIVE RESEARCH ANNOUNCE STRATEGIC ALLIANCE TO IMPLEMENT NF PLATFORM CLINICAL TRIAL CTF PRESIDENT ANNETTE BAKKER'S GLOBAL ALLIANCE FOR PATIENT ACCESS PRESENTATION CTF President Annette Bakker participated in a webinar about clinical trial access in Europe and the influence of revisions to the EU pharmaceutical legislation... More CTF COLLABORATES WITH NASA TO DEMOCRATIZE DATA The Children’s Tumor Foundation’s latest partnership is out of this world! CTF is euphoric to be part of the #YearofOpenScience, a collaboration spearheaded b... More CTF EUROPE IS HIRING A CEO Terrific opportunity for a European-based innovator ready to make an impact! Children's Tumor Foundation Europe is hiring a CE... More NFLECTION THERAPEUTICS ANNOUNCES POSITIVE RESULTS FROM ITS PHASE 2B CLINICAL TRIAL EVALUATING NFX‑179 GEL NFlection Therapeutics announced today positive results from its Phase 2b clinical trial evaluating NFX‑179 Gel as a treatme... More ANNOUNCING A NEW CHILDREN'S BOOK FROM THE CHILDREN'S TUMOR FOUNDATION Café Au Lait: A Story of NF1 and My Special Spots A new book for children from the Children’s Tumor Foundation... More 2023 NF CONFERENCE RESEARCH REPORT We hope you enjoy this summary of the important research presented at the Children's Tumor Foundation 2023 NF Conference, whic... More CHILDREN’S TUMOR FOUNDATION INVESTS NEARLY $700,000 IN NF1 YOUNG INVESTIGATOR AWARDS AND DRUG DISCOVERY INITIATIVES New projects and drug development to focus on MPNSTs, pseudarthrosis, breast cancer risk, biomarkers, and learning disorders The ... More CHILDREN’S TUMOR FOUNDATION ANNOUNCES SUBSTANTIAL INVESTMENT IN NF2-RELATED AND NON-NF2-RELATED SCHWANNOMATOSIS DRUG DEVELOPMENT AND NEW PROJECTS Three-quarters of a million dollars to fund critical research The Children’s Tumor Foundation (CTF) is pleased ... More View All News * * * * * Contact Us 1-800-323-7938 info@ctf.org National Office 697 Third Avenue Suite 418 New York, NY 10017 Send Donations To: Mail Code: 6895 P.O. Box 7247 Philadelphia, PA 19170 - 0001 About Us * Foundation Staff * Board of Directors * Business Advisory Council * Medical Advisory Committee * Clinical Care Advisory Board * Careers at CTF * Financial Information Get Involved * Ways to Give * Fundraise * Spread the Word * Find an Event News & Apps * Newsfeed * Newsletter * Mobile Apps Resources & Policies * Privacy Policy * Branding * Resource Center This website uses cookies to improve your experience. By continuing to use this website, you agree to cookies being used. To learn more, please view our Privacy Policy Continue