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Neuroblastoma Info

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 * 
 * About Neuroblastoma
   & Research
   about neuroblastoma and research 2
   About Neuroblastoma
   & Research
    * What is Neuroblastoma? ›
    * How is Neuroblastoma Diagnosed? ›
    * Treatment and Clinical Trials ›
    * Understanding Clinical Trials ›
    * Neuroblastoma Research ›

 * Newly Diagnosed
   newly diagnosed
   Newly Diagnosed
    * Coping With a Neuroblastoma Diagnosis ›
    * Understanding the Treatment Options ›
    * Preparing for Treatment ›
    * Getting to Know Your Treatment Team ›

 * In Treatment
   in treatment
   In Treatment
    * Non–High-Risk (Low- or Intermediate-Risk) Treatment ›
    * High-Risk Treatment ›

 * Supportive Care
   supportive care
   Supportive Care
    * Supportive Care Overview ›
    * Nausea and Vomiting ›
    * Constipation and Diarrhea ›
    * Decreased Appetite and Nutrition ›
   
    * Blood Counts ›
    * Hair Loss ›
    * Mouth Sores ›
    * Pain ›

 * Relapsed &
   Refractory
   relapsed and refractory
   Relapsed &
   Refractory
    * What is Relapsed/Refractory Neuroblastoma? ›

 * After Treatment
   after treatment
   After Treatment
    * What Happens Next and When ›
    * Late and Long-Term Side Effects ›

 * Support
   support
   Support
    * Mental Health and the Childhood Cancer Journey ›
    * Caring for the Caregiver ›
    * Braving Neuroblastoma ›

 * Resources
   resources
   Resources
    * Request Resources ›
    * Downloadable Resources & Videos ›
    * Neuroblastoma Support and Advocacy Groups ›
    * Skivolo's Kid Zone ›
   
    * Questions to Ask Your Doctor ›
    * Glossary of Terms ›


SKIVOLO'S KID ZONE


WELCOME TO SKIVOLO’S KID ZONE

“Hi! My name is Skivolo! I am a young red panda with high-risk neuroblastoma.
When I was first diagnosed, I had many questions, such as "Why am I sick?,” "Did
I get cancer because I was bad?,” and "Can I play with other kids when I go to
the hospital?"

Scroll down to follow me on my journey and learn what it is like to visit the
hospital, have tests done, and receive special medicines!




NEWLY DIAGNOSED

I want you to meet my family! They helped me a lot when I was first diagnosed.
Here is my mom, Patrino, my dad, Patro, and my sister, Jenu. They all love me
very much and are with me on my neuroblastoma journey.

To learn about high-risk neuroblastoma and the tests you may need, check out my
book, The Big Adventures of Little Skivolo.

 * Download in English
 * Descargar en Español
 * Télécharger en Français


IN TREATMENT

Part of my neuroblastoma journey included a medicine called antibody
(ANT-E-BODY) therapy. This was given to me in the hospital to treat my
neuroblastoma.

This is Doctor Kono and Nurse Felicia, who took care of me while I was in the
hospital. They explained to me and my family what antibody therapy was and how
it worked inside my body.

To learn more about antibody therapy and how it works to fight high-risk
neuroblastoma, you and your parents can read The Next Big Adventure of Little
Skivolo.

 * Download in English
 * Descargar en Español
 * Télécharger en Français




AFTER TREATMENT

Hi! I’m Skivolo’s friend, Zara. I’ve finished my neuroblastoma treatment. I
can’t wait to tell you about all of the new adventures I’m launching into with
the help of my family and healthcare team.

Please look for a special note in my book from my friend Leah Still, daughter of
former NFL player Devon Still. Just like me, Leah has finished her neuroblastoma
treatment and shares details about her journey.

To learn more about life after treatment has finished, you and your parents can
read Zara Takes Off.

Download in English

Descargar en Español

Télécharger en Français

LITTLE SKIVOLO’S BIG BOOK OF FUN

Little Skivolo’s Big Book of Fun is an activity and coloring book for patients
and their families. The coloring activities, games, crafts, and puzzles in this
book can keep your child and their siblings engaged during hospital visits.

 * Download in English
 * Télécharger en Français



Next:Glossary of Terms

Glossary of terms

Learn the meanings of key words related to neuroblastoma and treatment.

Neuroblastoma Info

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