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 * Home
 * About Us
   * Who We Are
   * Board of Directors
   * Medical Advisory Board
   * Global Network
   * Annual Reports
   * Financial Reports
   * Sponsors
   * Code of Conduct
   * Contact
 * Global Info
   * Our Global Network
   * Partnerships
   * Patient Charter
   * Global Patient Survey
   * World Kidney Cancer Day
   * Global Conferences
   * The Cecile and Ken Youner IKCC Scholarship
   * e-Atlas
 * Events
   * Global Conferences
   * World Kidney Cancer Day
   * Kidney Cancer Roundtable (EU)
   * Clinical Leadership Workshop
 * Resources
   * COVID-19 Cancer-Related Resources
   * Treatment Guidelines
   * Book of Courage and Hope
   * Decision Aids
   * Kidney Cancer & Nutrition
     * Kidney Cancer Diet & Nutrition Booklet
     * Seasonal Recipe Booklets
   * Factsheets
   * InfoHub
   * Publications
   * Helpful Links
 * Clinical Trials
   * Understanding Clinical Trials
   * Lay Summaries of Kidney Cancer Trials
   * Clinical Trials Search
   * Infographics for Study Results
   * Retention in clinical trials
 * News
   * Latest News
   * Newsletters
 * Media
   * Media Kit
   * Media Contacts
   * IKCC Press Releases
 * InfoHub
 * e-Atlas


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HomeKathleen Duprey2024-05-20T10:38:13+02:00


WORKING TOGETHER TO REDUCE THE GLOBAL BURDEN OF KIDNEY CANCER

Kidney cancer is a global issue. Every year, 431,000 people worldwide will be
diagnosed with kidney cancer.

Click here for shareable information, graphics and materials about kidney cancer
for patient organisations worldwide.





OPEN CALL: IKCC BOARD OF DIRECTORS

We are pleased to share the Open Call for Expressions of Interest to Join IKCC
Board of Directors.

There are three Board positions open for nomination for 2024:
Secretary-Treasurer (Elect), Vice Chair (Chair, Elect) and Director (General
Board Director).

All information about the positions and how to apply can be found here. Deadline
for application is June 30 2024.

Read more


WORLD KIDNEY CANCER DAY 2024

World Kidney Cancer Day 2024 will take place on Thursday 20th June.

This year the theme is ‘listening’.

Being listened to: Highlighting the benefits of shared decision making.

If you don’t feel listened to: Helping patients feel empowered to seek a second
opinion.

Choosing who you listen to: Creating awareness around misinformation and how to
check if sources are reliable.

Details of resources and events will be available nearer the time, but be sure
to save the date and find out how your organisation can get involved by
contacting wkcd@ikcc.org

Find out more


IKCC 2023 ANNUAL REPORT

The IKCC 2023 Annual Report has now been published!  Check out the impact we
have had as an organisation through collaborations, partnerships, and the
combined strength of the global kidney cancer community.

The Annual Report highlights how our strategic priorities come to life through
activities and programs:

Empowering Patient Organisations

Promoting Patient Voice

Providing Research & Information

Advocating for Access to Treatment

Raising Awareness of Kidney Cancer

 

See what we achieved together in 2023 here.

Read more


TWEETS FROM @IKCCORG

IKCC Kidney Cancer Follow 5,831 4,764

The International Kidney Cancer Coalition (IKCC) is the only global
collaboration of patient groups working to reduce the burden of kidney cancer.


Retweet on Twitter IKCC Kidney Cancer Retweeted
; Deb Maskens @DebMaskens ·
30 May 1796210087423262954


Would love to talk about new/existing basket trials for "non-clear cell
carcinoma" like this one for example:


Thoughts? Especially given recent EAU Guidelines for #papillary etc.

Reply on Twitter 1796210087423262954 Retweet on Twitter 1796210087423262954 2
Like on Twitter 1796210087423262954 4 Twitter 1796210087423262954
; IKCC Kidney Cancer @IKCCorg ·
30 May 1796204648409321683


The IKCC is very proud of the contribution of our Medical Advisory Board member
Dr. Stênio Zequi of the A.C.Camargo Cancer Center and LARCG (Latin American
Renal Cancer Group) for two landmark, high impact research reports (1/5)


Twitter feed image.

Twitter feed image.

Twitter feed image.
Show Thread
Reply on Twitter 1796204648409321683 Retweet on Twitter 1796204648409321683 1
Like on Twitter 1796204648409321683 7 Twitter 1796204648409321683
; IKCC Kidney Cancer @IKCCorg ·
30 May 1796204652691669316


The other article in Nature Genetics (April 26th), which included samples from
over 1500 patients in Brazil, identified previously unknown genetic
susceptibilities to developing kidney cancer including the papillary subtypes.
(4/5)

Reply on Twitter 1796204652691669316 Retweet on Twitter 1796204652691669316 0
Like on Twitter 1796204652691669316 1 Twitter 1796204652691669316
; IKCC Kidney Cancer @IKCCorg ·
30 May 1796204653870297436


Stênio created LARCG over 10 years ago and has been collecting patient data and
samples diligently to better study kidney cancer. Congratulations to Stênio and
his team. @acccancercenter @larcg_org (5/5)

Reply on Twitter 1796204653870297436 Retweet on Twitter 1796204653870297436 0
Like on Twitter 1796204653870297436 1 Twitter 1796204653870297436
Retweet on Twitter IKCC Kidney Cancer Retweeted
; Deb Maskens @DebMaskens ·
27 May 1795228066580504896


Great episode! Would love to see a talk like this for patient advocates to
really dive deeper into trial results. Always learn new insights from
@PavlosMsaouel. Thank you!

Reply on Twitter 1795228066580504896 Retweet on Twitter 1795228066580504896 4
Like on Twitter 1795228066580504896 7 Twitter 1795228066580504896
; IKCC Kidney Cancer @IKCCorg ·
30 May 1796194412415820139


Interesting question and it is important to hear from both patients and health
care providers. @kcCURE survey reported 59% of patients with rare kidney cancers
favor keeping non-clear cell. What is your vote?

Reply on Twitter 1796194412415820139 Retweet on Twitter 1796194412415820139 2
Like on Twitter 1796194412415820139 7 Twitter 1796194412415820139
; IKCC Kidney Cancer @IKCCorg ·
28 May 1795539393538879795


Interesting phase 2 study of 40 patients with non-clear cell RCC that suggests
benefits in progression free survival and overall survival with cabozantinib and
nivolumab combination.

Reply on Twitter 1795539393538879795 Retweet on Twitter 1795539393538879795 1
Like on Twitter 1795539393538879795 5 Twitter 1795539393538879795
Retweet on Twitter IKCC Kidney Cancer Retweeted
; Deb Maskens @DebMaskens ·
26 May 1794740087214821563


Looking forward to seeing the "red" carpet rolled out for all of the patients
and families, present and not, who joined the #clinicaltrials to be presented at
#ASCO24
Thank you for volunteering, for moving the science forward!

Reply on Twitter 1794740087214821563 Retweet on Twitter 1794740087214821563 2
Like on Twitter 1794740087214821563 13 Twitter 1794740087214821563
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DID YOU KNOW?


> KIDNEY CANCER IS OFTEN FOUND BY ACCIDENT.




> KIDNEY CANCER IS THE 14TH MOST PREVALENT CANCER WORLDWIDE.




> ABOUT 59 PER CENT OF KIDNEY CANCER CASES OCCUR IN MORE DEVELOPED COUNTRIES.





OUR GLOBAL NETWORK

IKCC welcomes every organisation that has an interest in kidney cancer and who
pledges to conform to our Code of Conduct. We extend an open invitation to
become part of this international network.

Explore Our Global Network


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JOIN OUR MAILING LIST

In the newsletter we highlight news about kidney cancer diagnosis and treatment,
and other relevant discussions.


Sign up


info@ikcc.org  +44 (0) 7973 777 202

Foundation, registered in The Netherlands under:
Stichting International Kidney Cancer Coalition
Computerweg 22, 3542 DR Utrecht, The Netherlands
Initiated September 2009, Registered December 2014 | Registered No KvK 62070665

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WHO WE ARE

An independent international network of patient organisations that focus
exclusively, or include a specific focus, on kidney cancer.

Find out more →


JOIN THE IKCC

You want to be a part of the IKCC? Under the Constitution of the International
Kidney Cancer Coalition organisations and individuals may apply for Affiliate
status.

Find out more →


Partner Organisations





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